摘要
Background: Prenatal genetic testing (PGT) for Autism Spectrum Disorders (ASD) raises more complex ethical, legal, and social implications in Taiwan than in Western countries due to policy-related, practical, cultural, and familial reasons. This first qualitative study examines attitudes towards PGT for ASD among Taiwanese parents of children with ASD – an elevated risk group for having another affected child, and one that is mostly likely to be impacted by PGT for ASD. Methods: We conducted in-depth, face-to-face, individual, semi-structured interviews with 39 parents of children with ASD from various ASD organizations in Taiwan. Results: Most parents favored PGT for ASD mainly for terminating the affected pregnancy and receiving early intervention and treatment. Less than one-third of participants was against PGT for ASD due to perceived no value for this testing, contradiction with religion and/or personal beliefs, doubt of the test's accuracy, or concerns about the negative consequences of the testing. Conclusion: The majority of Taiwanese parents of children with ASD in this study supported PGT for ASD. Guidelines and regulations should be developed to regulate the provision and quality of this testing. Genetic counseling should also be recommended to parents of children with ASD in Taiwan.
原文 | 英語 |
---|---|
頁(從 - 到) | 36-43 |
頁數 | 8 |
期刊 | Research in Autism Spectrum Disorders |
卷 | 48 |
DOIs | |
出版狀態 | 已發佈 - 2018 4月 |
ASJC Scopus subject areas
- 發展與教育心理學
- 臨床心理學
- 精神病學和心理健康